How to Get Better HIV Treatment
By James Myhre | Medically Reviewed by Anju Goel, MD, MPH
Sorting through HIV treatment options can be challenging. You may be struggling with your current medication and wonder what other options are available. Or maybe you saw a TV ad about a new drug and wonder why you’re not on it. By sharing these concerns with your healthcare provider and letting them know about your symptoms, medical history, and lifestyle, you can better understand your treatment options. But we get it. That’s not always easy, which is why we created this handy, doctor-informed, interactive questionnaire. To get started:
- Answer eight questions about your condition and treatment history.
- Print or email your custom discussion guide.
- Finally, share it with your provider at your next appointment.
Symptoms
If you have been newly diagnosed with HIV, your doctor needs to know about any symptoms you have. This way, they can monitor, treat them, or check for co-occurring illnesses.
If you are already on treatment, your doctor will want to determine if your symptoms are due to the medications you’re taking or a sign of an HIV-associated illness.
Which of these symptoms are you experiencing? Select all that apply:
Medical History
Certain medical conditions may limit your treatment options. It’s vital you share this information with your care team.
What conditions are you currently being treated for or have been treated for in the past? Select all that apply:
Medical History
Having certain drug allergies may limit your treatment options. Sharing this information with your care team lessens the chance of being given an HIV treatment that will elicit an adverse reaction.
Do you have any drug allergies? Select yes or no:
Medication & Supplement History
Certain prescription medications, over-the-counter drugs, supplements, and herbal remedies (like St. John’s wort) can interact with HIV medications. It is also possible that HIV drugs you’ve taken in the past will affect how well other HIV drugs of the same class will work in the future. This is why it’s crucial to provide your healthcare provider with your complete drug and supplement history.
Select all medications that you are currently taking or have taken in the past:
Risk Factors
Certain risk factors can influence your long-term health if you have HIV, either by increasing your risk of HIV-associated illnesses (like pneumonia or liver disease) or by interfering with your ability to take your drugs as prescribed. By discussing these with your healthcare provider, you can find ways to address and overcome them.
Which of the following risk factors applies to you? Select all that apply:
Treatment Adherence
HIV drugs require a high level of adherence. Staying consistent with your prescription helps keep the virus fully suppressed and ensures that you don’t develop early drug resistance, causing your medication to become ineffective.
Even if you are not yet on treatment, identifying potential barriers to adherence can help your doctor select the drugs best suited for you. They can also offer tips to help you better stick to your medication routine.
What challenges do you face (or foresee facing) that could prevent you from taking your medications regularly? Select all that apply:
Missed Doses
Although some current HIV drugs are more “forgiving,” allowing you to miss the occasional dose without concern, missing frequent doses or taking a break from treatment can lead to premature drug resistance. The problem with this is that it can extend to other drugs of the same class, causing multidrug resistance. By being honest with your healthcare provider about your treatment habits, you can find ways to either improve adherence or decide if another treatment is needed.
How often do you miss doses? Choose one:
Knowledge
People who understand HIV and how to take their medications correctly stand a better chance of achieving and sustaining complete viral suppression. (This means the virus is undetectable in blood tests and untransmittable to others.) If there is something you don’t know, it is important that you speak with your healthcare provider, if only for your peace of mind. There are no silly questions.
What don’t you understand about HIV? Select all that apply:
Coping
HIV affects more than just your physical health. It can also take a toll on your mental health, affecting your ability to care for yourself and stay consistent with your treatment.
According to a review published in the journal AIDS, roughly 36% of people living with HIV experience major depression, while 15.8% have generalized anxiety disorder. Discussing how you feel emotionally is just as important as describing your physical symptoms. This way, your doctor can connect you to a qualified mental health professional.
Are you experiencing any of the following? Select all that apply: